Houston, Houston, Houston. Maybe I should have just said it twice, as this is only the second time down here this year. Maybe I should have put a little infinity sign after it, because I feel like this will be going on forever. At least for as long as I am deemed a cancer patient, which will be the next 8 years of my life, as that’s how much longer I have on one of my cancer meds.
I had a PET scan and MRA on Wednesday, late in the afternoon. The PET scan showed an angry lymph node near my lungs that’s being chalked up to post-COVID. It also showed “post treatment changes,” which is a phrase I don’t understand. The MRA showed my blood is flowing as it should be, including past the spot seen prior on the brain MRI from September. Sounds like lovely, great news right?
Wrong. Because there is no answer as to what is going on in my brain. There is no explanation why there is a new spot on my MRI. There is no answer why I’m so fatigued all the time. There is no answer as to why I’m struggling to do complex tasks and why my short-term memory has taken a hit. It’s really frustrating, because I want solid and concrete answers. But we do have a plan to address and track it all, so there is that. A plan brings me some peace, a second best in my type-A mind.
That’s it for now, warriors. Short and sweet, like me! Please enjoy these photos from the Natural Science Museum below. Mitch and I went there to kill some time on Wednesday, after we arrived to Houston and it was a lot of fun. A little reprise from being a “cancer kid” and having to accept some hard truths called reality lately. Go make your reality a bit more fun and full of child-like wonder like Mitch and I did, dear warriors, and as always……have a magical day.
Good to see that you were able to enjoy part of your trip.
It was so nice to meet you even in these undesirable circumstances. You have such a sweet soul and we pray your journey leads you to much improved health and perfect peace in the days to come. Thank you for your courage in sharing your experience. You are a true blessing to others!
Blessings,
Your new Oklahoma friends, Stu and Gina
You look lovely n the pictures, I understand your frustration of not being able to pin down the cause of your unpleasant symptoms, and hope that you continue the pursuit to find answers. Now you’ve got me singing “going back to Houston, Houston, Houston….” Keep a song in your heart, Julia!❤️